Climbing Ben Nevis - 2012
400ft Abseil off Northampton Lift Tower - 2018
I have two wonderful grandchildren – Madison (8) and Sam (4).
When she was only 3 weeks Madison, was diagnosed with Cystic Fibrosis. When she was born she seemed perfectly "normal". However she was losing weight no matter how much she was fed. So after several tests we were told the devastating news and our education began. CF was something I had heard of and had a vague idea that physiotherapy was needed as they coughed a lot. Now I know that there is so much more to it.
She is a warrior princess and has had to endure so many procedures and hospital visits in the past 6 years...all done with a magical smile.
Every minute of every day is a battle to keep her well and strong, but she takes her meds and does her physio without complaint. She is our inspiration!!
Thankfully Sam does not have CF or the defective gene. He is a normal, noisy boy!
What is Cystic Fibrosis?
Cystic fibrosis (CF) is a life-limiting genetic condition affecting more than 10,000 people across the UK. It affects the lungs and digestive system and can cause chronic infections and reduced lung function. Currently, half of those with CF will not live past age 41.
The Cystic Fibrosis Trust is fighting for a brighter future for people with CF and their families by funding cutting-edge research, driving up standards of care and supporting people with the condition and their loved ones every step of the way.
Every day CF warriors have to take a combination of medications just to keep themselves "well".
Every time Madison eats anything that contains fat she has to have Creon, which enables her body to be able to absorb the fat.
She has been on antibiotics since she was 3 weeks old.
CF takes over everything!
Madison has a medicine fridge, nebulisers, inhalers and a multitude of medications. Part of the kitchen has been converted into a working medical areas.
Physiotherapy is part of her daily routine. It's essential to dislodge as much of the sticky mucus off her lungs as possible, to prevent infection.
I have made it my mission to do as much fundraising for the Cystic Fibrosis Trust as I can. So far I’ve climbed Ben Nevis, hosted an auction and recently abseiled down a 400ft lift tower raising thousands of pounds. I will continue to do what I can for this cause that is so close to my heart....so look out for my next adventure!